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The personal is political - women's experiences of dementia

Dementia is an issue that disproportionally affects women. The Alzheimer's Society tells us that two thirds of the people living with dementia in the UK are women and many research papers state that most family carers and those paid to care for people with dementia are also women.

Find out more from a Guardian article from February 2015. The full report 'Women and Dementia: A Marginalised Majority' from Alzheimer's Research Trust will be published in March.

But what do we really know about the experiences of women affected by dementia?

How are their experiences of dementia shaped by their experiences of being women?

We have been working with women affected by dementia to enable them to tell their stories.

These stories enable us to explore the implications of the perspectives of women on dementia research, policy and practice.

We hope to inspire a change in training and awareness raising and to inspire more research.

We have produced a booklet about these experiences - which you can down load from this website.

You are welcome to develop these resources for training or awareness raising - or for any other purpose you can think of. Please get in touch.

The voices of the women involved in this project are initiating a debate and opening up discussions around the lives of women affected by dementia.

JRF logo This project is funded by Joseph Rowntree Foundation as part of their Dementia Without Walls programme.

It is run jointly by Innovations in Dementia CIC and the Social Policy Research Unit at the University of York.

Thoughts and Opinions
An unexpected spin off the statistics about dementia

I remember sitting with colleagues where I worked at Help the Aged (before it merged with Age Concern) eight or nine years ago. We were talking about the charity's future and discussing which issue, pertinent to our ageing society, might provide a focus for the charity if it had to focus on one topic. We picked 'dementia', knowing it affects more than 800,000 people in the UK, that many live people with undiagnosed disease and that there is no treatment or cure. Much shaking of heads. The public might put dementia in the 'too difficult' box. ...  read more ...

More thoughts and opinions ...

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